Pnuemonia

2-4-12

My baby girl had chest xrays today after battling being sick since last Saturday. Her lungs were bilaterally affected from top to bottom, right down the sternum- bacterial pnuemonia. I'm glad we took her when we did as I knew the antiobiotics she did have weren't working, and Nic and I were both right that something worse was going on. We have her home since the only thing a hospital can do that we aren't equipped to do at home is give her an iv antiobiotic course which, at this point, we don't think she will need...but still. The "H" word looms in a very tangible place that stinks so badly I can smell it in cyberspace. I DETEST the "H" place. I almost used the "H" word - but God is love, and that is the place some people go to get better, right?

She's on inhaled steroid, antibiotic, two inhaled breathing treatments and is currently on her trach collar & oxygen at 100% 5 liters through it. *sigh* I'm glad we have our pulseoximeter - I wouldn't be able to sleep if I didn't know her sat. (Sat definiton: Saturation Level. Level of oxygen saturation in ones blood)
Terms you learn along the way. Nic and I are a walking medical terminology dictionary. Heck (see I'm so frazzled I almost typed the double hockey sticks word) we are usually having to not only SPELL her 'diagnosises' (PLURAL) to doctors, we often have to 'remind' them what they are. *sigh again*

I'm feeling weak in spirit I think only because I'm frustrated and I feel like there is this unending mountain we're climbing up when we - SHE- should only have to be sitting in a sled, enjoying the ride down. STUPID mountain

Blessings

#1 My baby is home with me right now

#2 The my once girly nursery/bedroom is now Cayleigh's at-home hospital room equipped with a couch to sleep on, her medical supplies , machines, medicines,and so forth and so we can take care of our girl

#3 That my HUSBAND is by my side! I don't know how many times I read of marriages or relationships being broken by medical problems with children, or with adults for that matter. I fully believe that the Lord has put him by my side because he is strong when I am not, he knows what I'm thinking and because he's the man God intended for me to be with.

#4 My children. I am SO BLESSED to have four beautiful children. I know that they are a gift from God and I WILL NEVER take them for granted. I know unconditional, true love because of Christ's wisdom shown to my through my daughter, my sweet and precious Cayleigh. If you're ever stressed out because your baby is crying - stop and realize your BLESSINGS.

#5 To have a home to sleep in, warm beds for my children, food to eat and God's LOVE and WORD to comfort and nourish me.

I am so thankful but I am so tired. My hope rests in Him, and I continue to pray and trust and believe that the Lord will HEAL my baby.