Just a quick update as I pump (you're welcome for that visual). I got back to the hospital with the kiddos after stopping off to pick them up some coloring things. Can I just say that I remember when markers and crayons and colored pencils were like a dollar? Geesh. 9.99 for colored pencils.. yeah, if they are made out of GOLD.
Anyhow, I got up to the hospital and on my way there I'd received a call from Cayleighs night nurse. Shes a tall, curly long brown haired girl with fair skin and pretty eyes who we met last night. She asked me if she could take Cayleigh from her current wing of the ICN (Intensive Care Nursery) to the area where her 2 other babies were. I say yes. She didn't want to run back and forth because Cayleigh is so precious and needs TLC. I like her
We arrive, in the rain *sigh*, and I walk in to find Cayleigh wide awake, staring at the Tiny Mobile swing above her head. I'm excited because I'd brought her Aveeno Baby Wash (she gets a breakout if you use ANYTHING else), several snappy outfits, socks and hats for her. I also brought her special oil that I do my massages with her during ROM time. Cayleigh is 'eating' and so I just hold her hand and we talk about the brightly colored animals on the mobile. I talk to her about Mozart and Bach and ask her which song she likes better..she didn't respond to me at all. she was totaly fixated on that dang mobile. I will say that she was tracking the animals though. I think she just decided to ignore me today.
After she was done, I decided it was bath time. My nurse went to break and I had some lady I didn't care for covering for her. Another baby, Lexi (who is a HUGE 6 month old thats absolutely adorable) managed to pull out the feeding tube that goes in her nose to her stomach. It was pulling teeth to get a wash basin, but I got one. We had a bath, a massage and did ROM and she was a happy Bug.
Unfortunately at this hospital they don't have crap in the way of child activities for siblings. The parking is MUCH cheaper, and I don't have to deal with SF or the people and traffic there.. but gosh does it have its downfalls. So the kids can't be bedside because Cayleigh is on 'droplets precautions', but the nurse I like came back and said they could sit in the empty bed area. This new side we're on has only 3 babies and its big, open and really quiet. Or, it was until my kids got in there. We stayed not too long afterwards but the kiddos got a real kick out of Lexi. The nurse is her primarty and you can tell she loves her. She tells me that I should talk to the dr so that she can be Cayleigh's primary too if she'll be there long. I tell the nurse I'm going to make Lexi an over the top bow headband and bring it tomorrow, she seems excited. :) (I've already made it - see the pics)
I prayed with Cayleigh and I'm so exhausted right now and feel so stressed with Nic gone and the kids not being able to have anything to do or to be in the parents lounge alone because they are under 10 that I just need prayers for peace.
I'd like to ask for prayers for Cayleigh:
Please pray that:
1. The doctors have divine wisdom and guidance in testing and treating Cayleigh to 'cure' her desats altogether
2. That Cayleigh immediately have a strong swallow, strong suck, strong cough
3. That she have fluid, easy, pain free movements in all extremeties
4. That she not only focus on, but respond and interact with me (us/others)
5. That Cayleigh have peace while her family isn't with her, that she not be scared or lonely (makes me tear up thinking about it) and have total comfort . That the Lord would sit by her bedside and talk to her and comfort her. I believe it
6. That she have a sound mound.
Pray for Nic:
1. That he be safe during his travelling on planes and in vehicles
2. That he be a light to shine for Jesus Christ amongst non-believers and that he can share his faith and what God has done in his life recently through Cayleigh Jean
3. That he be safe during working. along with his coworkers
4. That he have peace and comfort during his time away
Pray for the kids:
1. That they behave
2. That they have peace and comfort with all these changes going on
AMEN
Lexi's bow :)
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