Monday, October 31, 2011
Cayleigh's First Halloween {I guess}
I wasn't the biggest fan of us taking the kids around two streets tonight to collect candy from random strangers who've attempted to decorate their houses in such a way, and dress in such a way that they want to evoke fear in my children, I'll admit it. {So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. Isaiah 41:10} but, we did because my "Lights on the Lawn" idea was a flop...this time. Cayleigh was a pumpkin..the cutest pumpkin you ever did see.
But this blog isn't about that because Halloween isn't something I really care about celebrating {but yes, I'll eventually put up some pictures}. Instead, I'm going to put up some videos of the most amazing little person in the entire world. {Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows. James 1:17}
She is amazing and I am blessed, WE are blessed, to watch her grow and thrive. I actually took a {very short} trip down memory lane last night by looking at some pictures of her from when she was first born. I only lasted about 15 minutes before I started to tear up. I touched the screen several times telling {the "then her"} her that it'd be alright, that it was okay and that I was sorry. I thought about how many times she was in the hospital and for the entire day, everyday and I just felt terrible that I couldn't be there for every second of it.
She's been through so much - she is incredible, and strong, and smart, and beautiful. You should see her... actually, here, see her. Watch her smiling, watch her following her milky and watch her {tonight} as she sleeps. I want to capture every moment so that the next time I take a trip down memory lane and look at these videos I will see only how far she has come, what a blessing she is and how much our love for her {and God's eternal mercy and favor} has helped her grow.
Monday, October 31, 2011
Sunday, October 23, 2011
YOU SEE her smile.
Sunday, October 23, 2011
"You See"
You see eyes that seem fixated in the wrong direction .. .. I see the numerous times my sweet girl locks eyes with me for what seems like hours
You see a baby who doesn't move ... I see a baby who lifts her legs at changing times, who is working with all her might to roll all by herself and turns her head in whatever direction her daddys voice is coming from
You see a baby who gets fed wit a g-tube .. . I see my baby eating her lunch
You see a baby with a trach ... I see an extra nose/mouth that allows my baby to breathe normally
You see a baby and wonder 'what's wrong'... I see an intelligent little girl who tries harder than you ever will to challenge herself to move, to learn, to focus
You see a little girl with disablities ... I see a little girl with a world of possiblities
You see parents who must 'have it so hard'... I see parents who KNOW, beyond all doubt, that they have been blessed with a living, breathing miracle
"You See"
You see eyes that seem fixated in the wrong direction .. .. I see the numerous times my sweet girl locks eyes with me for what seems like hours
You see a baby who doesn't move ... I see a baby who lifts her legs at changing times, who is working with all her might to roll all by herself and turns her head in whatever direction her daddys voice is coming from
You see a baby who gets fed wit a g-tube .. . I see my baby eating her lunch
You see a baby with a trach ... I see an extra nose/mouth that allows my baby to breathe normally
You see a baby and wonder 'what's wrong'... I see an intelligent little girl who tries harder than you ever will to challenge herself to move, to learn, to focus
You see a little girl with disablities ... I see a little girl with a world of possiblities
You see parents who must 'have it so hard'... I see parents who KNOW, beyond all doubt, that they have been blessed with a living, breathing miracle
Thursday, October 13, 2011
A Can Do Attitude
Thursday, October 13, 2011 Smarter than the Average Baby You know, 'they' say she suffered brain damage and that, though'they' weren't sure how, it would effect Cayleigh. We've heard everything from cognetive impariment, mental retardation, unable to communicate, unable to move, probably won't walk, probably won't...blah blah blah.
Well I've decided that I'm going to start this blog right back up again folks! I'm going to try and post everyday (or few ... lol) with a little snippet on just how our Cayleigh Jean is doing - and will probably be posting video clips much like the one I'm sharing tonight! It was SO cool tonight. We were laying on the bed after her PT time and she was pulling her head & upper body to the side - which is her version of rolling. I assist her with her hips because, after all, they are dislocated. Anyhoo - I noticed that she was moving her hands to one another and using her thumbs (which are the only fingers easily extended for her) to touch her fingers on both hands. She'd move her left thumb to touch the fingers on her right clenched fist , and vice versa. I got up quickly to grab the phone and take a video - and here it is!
It's amazing how far she's developed post trach. She's gained almost 3 whole pounds since she's had it because her calories are no longer being spent on focusing to breathe. She's developmentally a changed child. She interacts a vast amount more, she's got great coloring, she's physically moving a TON more. It's a real, true miracle and God has put it right in front of us.
On a side note I wanted to say that this past month at the UCSF hospital was hard on us both. It's been like we've done nothing but spent the last seven months of our lives in the hospital. Different people saying different things, explaining all the 'conditions' over and over, going over meds over and over.. it's just exhausting. We're glad to be home.
I have been told that I am a strong woman but in truth I am only strong because 1. I have a strong God and 2. I have a strong man by my side to help me when I'm not feeling on top of my game. Philippians 4:13 New King James Version (NKJV) 13 I can do all things through Christ[a] who strengthens me. and THAT, my friends, is the truth. I'm nothing but a hot mess and all of this would have clean wiped me out had it not been for prayer and God's mercy. I'm not going to sit here and claim to know why Cayleigh is afflicted - but what I do know is that He has plans for her more amazing that any of us will ever know. Who knows, maybe some day SHE'LL be taking over the blog.
Enjoy
Well I've decided that I'm going to start this blog right back up again folks! I'm going to try and post everyday (or few ... lol) with a little snippet on just how our Cayleigh Jean is doing - and will probably be posting video clips much like the one I'm sharing tonight! It was SO cool tonight. We were laying on the bed after her PT time and she was pulling her head & upper body to the side - which is her version of rolling. I assist her with her hips because, after all, they are dislocated. Anyhoo - I noticed that she was moving her hands to one another and using her thumbs (which are the only fingers easily extended for her) to touch her fingers on both hands. She'd move her left thumb to touch the fingers on her right clenched fist , and vice versa. I got up quickly to grab the phone and take a video - and here it is!
It's amazing how far she's developed post trach. She's gained almost 3 whole pounds since she's had it because her calories are no longer being spent on focusing to breathe. She's developmentally a changed child. She interacts a vast amount more, she's got great coloring, she's physically moving a TON more. It's a real, true miracle and God has put it right in front of us.
On a side note I wanted to say that this past month at the UCSF hospital was hard on us both. It's been like we've done nothing but spent the last seven months of our lives in the hospital. Different people saying different things, explaining all the 'conditions' over and over, going over meds over and over.. it's just exhausting. We're glad to be home.
I have been told that I am a strong woman but in truth I am only strong because 1. I have a strong God and 2. I have a strong man by my side to help me when I'm not feeling on top of my game. Philippians 4:13 New King James Version (NKJV) 13 I can do all things through Christ[a] who strengthens me. and THAT, my friends, is the truth. I'm nothing but a hot mess and all of this would have clean wiped me out had it not been for prayer and God's mercy. I'm not going to sit here and claim to know why Cayleigh is afflicted - but what I do know is that He has plans for her more amazing that any of us will ever know. Who knows, maybe some day SHE'LL be taking over the blog.
Enjoy
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