News is News

Tuesday, August 9, 2011
Doctor Follow Up


Last night, and really the last several times we'd been with Cayleigh since extubation (even when at the hospital) she kept making her crying face. We gave her Tylenol after having checked diaper, temperature, every part of her body, picking her up, rocking her, etc. and it still didn't really make any difference 1/2-an hour and a half later. At the hospital, the nurses were able to give her morphine to help her become comfortable. At home, however, we don't have that luxury. We thought maybe she was teething, even though no buds are showing or felt, so we used oragel and that didn't help either.

After having called the dr, we made an appt the next day (today) with a Dr. Bossy that is at Dr. Weger's practice. It dawned on us that maybe it was a poop problem and that, with all the medications and pain meds, she might be really backed up. We gave her half a suppository but she ended up pooping that out anyhow... and, honestly, right before we gave it to her she let out a big poop. I guess the mommy tummy rubbing helped. Daddy and I were relieved.

Anyhow, today we took her to the dr. She weighed her in at 12 lbs 2 ounces. Far off from the 14 lbs that the hospital had her weigh in, but up 1 lb from her last dr visit 20 days ago. We went over all that'd happened, our concerns, etc and decided she's ok, got med refills and decided that we'd postpone making her wear her helmet or go to Physical Therapy at least for the remainder of this week.

The dr ordered lab results for the following:
1. Cayleigh has a really low hemoglobin level
Causes: They aren't really sure (or at least won't say) but it could just be that she is anemic. They want to rule out any other potential problems with the test
and
2. The hospital wants to have her immune system checked
"They" want to rule out her being immune supressed for any reason (congenital) because she's had pneumonia twice (well once that we know of, the second time they werent even sure that's what it was) and because she's had the rhino virus twice. Which, basically, is just a cold. So what, right? I mean kids get colds -especially with germy siblings. Dr Bossy doesn't think there is anything wrong with her immune system but they, again, want to rule anything out that might be a problem

So, we are going to take her tomorrow to get her blood taken (DISLIKE) so please lift her in prayer. We would ask that she be protected from sickness, that Nic and I would have wisdom in caring for her, that she would remain healthy, gain weight well, be more interactive, alert, able to move, not need oxygen, not need a feeding tube and that the Lord would heal her mind and restore her completely.

We believe this will all come to pass, and we just continue to pray for her, for one another and for our family as we continue to walk down this path.

On the bright side.....
Cayleigh has become QUITE the wiggler. She was propped on the pillows, upright, and started wiggling (Using her upper body) to the left and got all the way down to her hip with her upper body/head. I then propped her back up and she got mad. Well, seconds later, she did it AGAIN. I propper her up, she got mad. This time I called to her and she wiggled toward me with her upper body again. I ended up video taping it..she's going to be JUST fine. I know it! Looks like we'll be baby proofing soon!