A Can Do Attitude

Thursday, October 13, 2011 Smarter than the Average Baby You know, 'they' say she suffered brain damage and that, though'they' weren't sure how, it would effect Cayleigh. We've heard everything from cognetive impariment, mental retardation, unable to communicate, unable to move, probably won't walk, probably won't...blah blah blah.

Well I've decided that I'm going to start this blog right back up again folks! I'm going to try and post everyday (or few ... lol) with a little snippet on just how our Cayleigh Jean is doing - and will probably be posting video clips much like the one I'm sharing tonight! It was SO cool tonight. We were laying on the bed after her PT time and she was pulling her head & upper body to the side - which is her version of rolling. I assist her with her hips because, after all, they are dislocated. Anyhoo - I noticed that she was moving her hands to one another and using her thumbs (which are the only fingers easily extended for her) to touch her fingers on both hands. She'd move her left thumb to touch the fingers on her right clenched fist , and vice versa. I got up quickly to grab the phone and take a video - and here it is!

It's amazing how far she's developed post trach. She's gained almost 3 whole pounds since she's had it because her calories are no longer being spent on focusing to breathe. She's developmentally a changed child. She interacts a vast amount more, she's got great coloring, she's physically moving a TON more. It's a real, true miracle and God has put it right in front of us.

On a side note I wanted to say that this past month at the UCSF hospital was hard on us both. It's been like we've done nothing but spent the last seven months of our lives in the hospital. Different people saying different things, explaining all the 'conditions' over and over, going over meds over and over.. it's just exhausting. We're glad to be home.

I have been told that I am a strong woman but in truth I am only strong because 1. I have a strong God and 2. I have a strong man by my side to help me when I'm not feeling on top of my game. Philippians 4:13 New King James Version (NKJV) 13 I can do all things through Christ[a] who strengthens me. and THAT, my friends, is the truth. I'm nothing but a hot mess and all of this would have clean wiped me out had it not been for prayer and God's mercy. I'm not going to sit here and claim to know why Cayleigh is afflicted - but what I do know is that He has plans for her more amazing that any of us will ever know. Who knows, maybe some day SHE'LL be taking over the blog.
Enjoy