All things come easier with time
To say that I've fallen in love with my daughter would be a gross understatement. She's the light of my world - the sunshine in my day. Today, Nic went back to work to 'see how it goes' so to speak, here locally before he makes the venture of flying across the country to work. He left a little after 6 am and was gone until just before dinner time.
Our room has become the place of Cayleigh, Mommy, Daddy and noone else. period. I take that back, not noone else - its just that you have to A) wear a mask, B) use hand sanitzer after you've washed your hands and C) you can't touch her. Other than that, it's a free for all.
The reason we are keeping it so locked down is that we had our first pediatrician appointment yesterday with Dr Gach, who suggested that we don't take her anwhere - not even outside unless we have to put her in the car to go to a doctors appointment - for at least a month. Just getting home from the NICU, we don't want to expose her to anybody we dont have to -- especially not their germs. Also, taking her outside doesn't allow her to regulate her body temperature very well. So until her immune system is better, she's bigger (primarily her airway) and her body temperature is more consistent we are going to keep her in her room. Our bed is her bed. No, seriously, she really REALLY likes it. According to daddy she can just keep it. We'll sleep on the floor.
Today I was lucky enough to have my mom spending time with the older kids so I could take care of my sweetheart. We start our days with a feeding, then a sponge bath, a massage, Range of Motion excercises, a few songs and lots of kisses. I hold her alot and I rub her tummy during her feeds like she prefers. I think it helps her digest better, takes her mind off the gas and makes her feel better. It makes me feel better too. We lay together and talk. i had her on my legs, out in front of me, and then I held her on my arm (its tricky to hold her too close with the G-tube) and she and I talked. She stared at me. She was trying (I believe) to mimick my facial gestures - she was certainly studying my smile real hard and moving her little mouth ever so slightly. She was absolutely deadlocked in on mommy for a few hours today. It's like she's coming awake now that we're home - we're getting to really know one another and I couldn't be happier.
I'm eternally grateful to have a husband who gets up to do her feed bag while I pump. He's wonderful. Really, I'm not just saying that - he's been the best thing ever to happen to me (besides the kids of course- well in addition to the kids. like I tell them - I love them each more than anything in the world, just in different ways) Cayleigh is his little clone.. it's hysterical. I'll go ahead and quit my rant and just give you guys the pictures! :)
Please keep Cayleigh in your prayers. That she make excellent progress, handle her feeds well, have increased flexibility and range of motion, that she can swallow her secretions on her own, is able to wean off oxygen soon and that she be alert, happy and know she is loved.
Please also pray for the kids, that they know how much we love them, that they don't feel neglected but instead respond positively to the new situation at home, that they are well behaved and obedient.
Finally, please pray for Nic and I. That we be encouraged each day with newfound hope, progress and strength. Thanks!
No comments:
Post a Comment
Share your thoughts...