From her Father, her PROTECTER

My precious babygirl was transfered today to UCSF. Everything went well getting her there, and they got her situated in her new room. (praise God)...But daddy still had a unsettling feeling in his heart today because i knew the doctors were going to start real evaluating her AGAIN!

The day started off with me going to get my SHOTS (TDAP AND FLU) so i dont get her sick when i visit her. Then it was off to see my baby. An hour and a half we were there trying to figure out were to go, in the maze they call the hospital. We finallly get to the floor and get signed in. The receptionist new who we were, which was pretty cool because at the other hospital, even after being there a million times they still asked who we were coming to see. That would frustrate me every time, (ask my wife she had to calm me down).

We go into the NICU and they have a exstensive washroom before we even get to our baby. Then another wash room when we do reach Cayleigh. Iam just in awe by all this by the time i can finally touch her. My wife and I both see that her feeding tube is threw her nose instead of her mouth like it used to be. We are both a little uneasy about this, but they reassure us its better for my beautiful girl. They also have her hooked up to some brain scan machine, because she looked a little jittery on the way to her new home. (i say new home, but its not permenant, she will be home with US soon).

By now a swarm of doctors and a social worker has found there way to us and want to talk privately with us. We pray over Cayleigh and mommy sings her a song. We head to a cramped room to talk. I want to know if the life threatening diseases are out of the doctors thoughts. They tell us they think something is wrong with my babys brain and they dont know. They say they need to do a MRI of her brain to find out whats wrong. There also going to have a genetologist, cardioloigist, orthopedic, and neurologist test my poor baby in the next couple of days. (NOW DADDY IS STARTING TO GET A LITTLE IRRITATED).

I ask the doctor what it is going to take to get my sweet baby home with mommy and daddy. The answer i get is a little bit hear breaking. They tell us if she doesnt START suck or swallow, THEY will be giving her a feeding machine threw her tummy and to stop the secretions because she cant swallow them, they would have to give her a tracheotomy. Mommy has to leave the room at this point and daddy is GETTING MORE IRRITATED. (remember this is a last resort) But the good news is the lord has his hands wrapped around her tightly and is going to heal her before any of this has to happen. We wrap up our little meeting up and fill out some paper work with the social worker and she is nice enough to give us a gas card that was donated to the hospital for parents who have to travel long ways. She also informs us tho that they had no more rooms for my wife to stay with Cayleigh and that we are on a waiting list with The Ronald mcdonald house for a room. We are both very sad that MOMMY couldnt stay with her, but we know god is with her at all times.

We head back to see our precious Cayleigh and they are doing Xrays on her now. We briefly get to give kisses to her and say our goodbyes. We will be seeing her wednesday to hopefullly go over her MRI results. Then we do more paperwork and talk with the breast pumping lady on procedures for mommys milk. We are both in awe still, and are ready to just go home. We pay our 9 dollars for being there for 3 hours and we take off home, Missing our baby, sad, and speechless. PLEASE LET HER GET BETTER SO WE CAN BRING HER HOME, WE NEED HER!!!!

Daddy has always been the strong type, not much crying, not alot of emotion. But man o man this is absolutely killing me inside. I still try and be strong for my family, they need a rock and i want to be that for them, but who does daddy talk to when he is broken...... and folks iam lost with out my Cayleigh Jean. I need her like the air i breathe.
I feel like iam not protecting her when she is lying in that bed with tubes and wires running all over her body, and she looks at me with those pretty little eyes and i feel like she is trying to tell me "Daddy help me". But i cant, i cant do anything but stare at her, and tell her how much I LOVE HER, AND THAT SHE IS MY HEART, MY SOUL, MY EVERYTHING!!!

I can promise this, My daughter will be coming home with us and is going to live a full life because she is a fighter and the lord is her physician.

Please keep praying for our beautiful daughter, thank you to everyone who already is and will keep praying. Tell everyone you know about our daughter. When two or more gather, the lord is with us. Amen