Tomorrow Is the Big Day

It's still Monday

Well, Nic and I had a great evening washing Cayleigh in her little bed under the warmer. She seemed to really like it - well, at first maybe not so much, but then she came around after lots of kisses and us talking to her while we did it. We also gave her a nice rub down with some thick lotion stuff they have at the hospital. That, she did enjoy. :)

I'm glad Nic came up to the hospital because it was one of those days. I blogged earlier today about all of the doctors who came up to visit. Well, when I got done pumping (I did this while I blogged last) I got a call from Nic who was in the parking garage across the street. Good timing. I ask him to please get me an Orange Dream Machine (or whatever its called) at the Jamba Juice and I'd meet him downstairs.

I drop off the milk and my bags. I'm stopped by an asian, soft spoken woman on the Neonatal team who says the surgical team wanted to talk to me about tomorrow. I tell her I want to go get my husband because I won't retain anything they say and I'll have to repeat it and he'll still have questions. She says she can stall them. She tells me that Cayleigh's dye testing thing was good. No abnormalities. Great! I head downstairs.

Its always nice to get off the elevator and see your husband standing there - especially when you've been away for an overnight trip - and especially when he has a Jamba Juice in his hand.

I give him a kiss and talk to him about everything I'd blogged about. After all, he hadn't had time to check it yet himself. Then I tell him that as I was dropping off my bags the surgical team came by and wanted to talk to us. I asked them to wait so that Nic could be present.

Nic and I get upstairs and Cayleigh was back. Lori says she had no problems during the test but a slight O2 desat in the elevator on the way up - but she recovered herself. Then, a lady comes over in scrubs. She looks pretty young, dark hair and she has her wedding rings on a necklace. This reminds me of mine that are hanging on my necklace at home. Soon, I'll be able to wear them again. She introduces herself as Dr Miranda, and tells us all about the gastrointestinal tube that is going to be placed. She explains they'll try doing it laproscopy but if that doesnt work they'll have to do a more evasive surgery. She talks about the risks but explains these are minimal. They do alot of these kinds of surgeries with success. somewhere in my mind I think to myself about Dr Fernando talking about being concerned about her airway. I rebuke it. The Lord is in control. He HAS this. He knew about this before I was even taking a breath. He is guiding them.

Nic asks her some questions. he wants to know if he can be in there. She says we can walk down with them but cannot go inside. I'd asked the anesthesia guy earlier too. He promised me he'd have a nurse by Cayleighs side to comfort her. I'll remind him tomorrow. He asks how long it will take. 2-3 hours she says.

She then asks me to sign some consent forms. The first one is for the surgery itself. I ask her for the name of the procedures they are going to do (She wrote them down) Laparoscopic Nissen Fundoplication and a Gasrostromy Tube. To be performed at 7:30 am.

Everyone, I need to end this blog a bit short because we need to be up and back at the hospital in 7.5 hours - please, pray for Cayleigh. Pray that she has no complications. That the anesthesia doctors have no problems inserting the breathing tube. That she has no pain. That the doctors are successful. and, please Lord we ask that this procedure will eliminate the Apnea/Bradies that she has, eliminate the reflux and eliminate the need for a trachea. We speak LIFE over this child in Jesus' name.
AMEN